Personal Genome Project

Mission

The mission of the Personal Genome Project is to encourage the development of personal genomics technology and practices that:

• are effective, informative, and responsible
• yield identifiable and improvable benefits at manageable levels of risk
• are broadly available for the good of the general public

To achieve this mission we will build a framework for prototyping and evaluating personal genomics technology and practices at increasing scales. In support of this goal, we will:

• develop a broad vision for how personal genomes may be used to improve the understanding and management of human health and disease
• provide educational and informational resources for improving general understanding of personal genomics and its potential
• recruit individuals interested in obtaining and openly sharing their genome sequences, related health and physical information, and reporting their experiences as a participant of the project on an ongoing basis
• develop technologies to improve the accessibility of personal genome sequencing
• foster dialog with research communities, industries, and public and governmental bodies with interests in personal genomics, and related ethical, legal, and social issues (ELSI)
• develop tools for interpreting genomic information and correlating it with related personal medical and biological information

We believe our mission is best served by soliciting input and promoting openness and collaboration from the very start to ensure that the different threads of personal genomics are all individually addressed and reinforce each other as they come together. Toward this end, we seek the involvement of individuals from research communities, industry, public bodies, and other stakeholders interested in contributing to our mission. Contact us.